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Media & Film
These videos and interviews capture pieces of my story and the work behind it. I’m grateful for every opportunity to share what families living with serious conditions experience and what we can do, together, to improve care, research, and support.
FTD advocate Emma Heming Willis talks about Katie's expert contributions to her book, The Unexpected Journey, and shares wisdom from Katie's late mother, Diane McMullen, on the importance of speaking up for others. ​
In this powerful essay in Aeon, Lynn Hallarman, MD, highlights one of the more difficult aspects of life with FTD; when behavioral symptoms become so difficult that law enforcement becomes involved. In this gripping piece, Dr. Hallarman interviews caregivers and experts to help us understand what happens when FTD is making the decisions and how we can be protect ourselves and our loved ones. ​
Katie provides an op-ed for the Boston Herald to highlight the need for family caregiver support ahead of her presentation at the Boston stop of the Alzheimer's Foundation of America Educating America Tour.
Katie was interviewed by Stephen Adams of Optimum TV to talk about the most common form of dementia to impact people under the age of 60. Listen as Katie shares the early symptoms that her husband experienced, the unique challenges to receive an accurate diagnosis and where caregivers can turn for support.
Katie was interviewed for a spotlight on resources for caregivers ahead of her presentation at the Alzheimer's Foundation of America Boston stop of the Educating America Tour.
The Massachusetts Biotech Council features the Brandt family story of love and loss after her husband’s battle with the rare disease, Frontotemporal Degeneration, in the educational campaign, Cures for the Commonwealth.
Congressionally Directed Medical Research Program: Katie Brandt: A Caregiver and Advocate's Story.
2016 American Academy of Neurology Neuro Film Festival Runner Up
The Association for Frontotemporal Degeneration spotlight’s Katie’s interview on the Ask a Matchmaker podcast to discuss dating while caregiving.
The Massachusetts Biotech Council featured Katie on the cover of the Summer 2020 MassBio Insider Magazine to highlight the 2020 Rare Disease Day event, of which Katie emceed for 5 years.
The Association for Frontotemporal Degeneration announces Katie’s position as Co-Chair of the National Alzheimer’s Project Act (NAPA) Advisory Council for Alzheimer’s Research, Care and Services with Alan Levy, MD of Emory University.
The Boston Globe
In an article in Globe South written by Paul Kandarian, Katie is interviewed about her inspiration to launch Love Is Out There and spearhead fundraising efforts for The Frontotemporal Disorders Unit at MGH.
Features the Brandt Family and Katie's work raising awareness by sharing her lived experience at the 2015 MassBio Rare Disease Day event.
AFTD Rare Disease Day Insert, Washington Post
March 23, 2013
Katie Brandt and Dr. Brad Dickerson: Understanding Frontotemporal Dementia. In an interview with Deborah Kahn, Editor in Chief of Being Patient, Katie and Dr. Dickerson discuss how FTD is different from Alzheimer's and how it can impact families.
The Butler Hospital Memory and Aging Program spotlighted Katie as a featured caregiver in the Summer 2020 issue of Memory Matters.
Katie was proud to partner with AFTD and the Discovery Channel to be featured in the AFTD PSA: "Think It's Alzheimer's? Think again" to promote a greater awareness for FTD and related dementias.
MassGeneral Magazine
Is a publication from the Massachusetts General Hospital Development Office. Highlights Katie's work to mobilize others and raise money for MGH research.​
The Brockton Enterprise
Highlights Katie's leadership while hosting the Comedy for a Cause fundraiser at The Alley Theatre in Middleboro, Massachusetts.
Katie's film, Love Is Out There, directed by Ghita Benslimane, was one of thirty films selected for screening at the inaugural festival and shown at the Brattle Theater in Cambridge, MA.
MassBio
The Massachusetts Biotech Council featured Katie on the MassBio Town Hall: Perspectives of the Caregiver with Paul Kidwell.
“Katie Brandt Provides 5 Critical Tips for Dementia Caregiving”
In an article on Shots Health News from NPR To Manage Dementia Well, Start With the Caregivers Katie Brandt is interviewed about her work with caregivers for loved ones with Frontotemporal Dementia, utilizing the DICE method for non-pharmacological behavior management.
2016 American Academy of Neurology Neuro Film Festival
Runner Up Award: Katie Brandt for “Love is Out There: A Story of Love, Loss, and Resilience in the Face of Frontotemporal Dementia,” a very personal and touching account of the loss of her husband, Mike, to this vicious disease resulting in the hope of raising awareness about this rare disorder to help other families navigate the struggle of caring for a loved one with FTD.
This 3 minute video provides highlights of Boston’s 2014 Rare Disease Day event at the Massachusetts State House where Katie was a featured speaker.
