Media

Delivering Guidance that Illuminates the Power of the Authentic Voice

Podcasts

Connecting with a wide audience of healthcare providers, family caregivers, and advocates in the rare disease and dementia community. 

Ask a Matchmaker

Caregiving, Grief & Dating

 

Remember Me FTD

Mike

Expert Chat #2

1 Year Anniversary Episode

Dementia Untangled

The Caregiver Trifecta

Publications 
& Media Mentions
2022

MassBio – The Massachusetts Biotech Council features  of loss after her husband’s battle with the rare disease, Frontotemporal Degeneration, in the educational campaign, Cures for the Commonwealth.  

AFTD - The Association for Frontotemporal Degeneration spotlight’s Katie’s interview on the Ask a Matchmaker podcast to discuss dating and romantic partnerships while caregiving and navigating the experience of grief and loss. 

Book Chapter:

What If It's Not Alzheimer's: A Caregiver's Guide to Dementia
 

Reference: Dickerson, B., Quimby, M., Brandt, K., & Wong, B. (2022). As the Symptoms Progress: Understanding the Stages of Disease in What if It's Not Alzheimer's?: A Caregiver's Guide to Dementia (pp. 129 - 135). Lanham, MD: Prometheus Books.

Congressionally Directed Medical Research Program: Katie Brandt: A Caregiver and Advocate's Story.

2021

Book Chapter:

Frontotemporal Dementia
 

Reference: Dickerson, B., Quimby, M., Brandt, K., Lucente, D. & Wong, B. (2021). Frontotemporal Dementia. In Neuropsychiatry and Behavioral Neurology Principles and Practice (pp. 599 - 617). New York, NY: McGraw Hill.

2020

MassBio – The Massachusetts Biotech Council featured Katie on the MassBio Town Hall: Perspectives of the Caregiver with Paul Kidwell.  

MassBio – The Massachusetts Biotech Council featured Katie on the cover of the Summer 2020 MassBio Insider Magazine to highlight the 2020 Rare Disease Day event, of which Katie emceed for 5 years. 

Butler Hospital – The Butler Hospital Memory and Aging Program spotlighted Katie as a featured caregiver in the Summer 2020 issue of Memory Matters. 

Butler Hospital – “Katie Brandt Provides 5 Critical Tips for Dementia Caregiving”

Book Chapter:  The Role of the Speech Language Pathologist in Behavioral Variant Frontotemporal Dementia 

 

Reference: Brandt, K., Dickerson, B. & Quimby, M. (2020). The Role of the Speech Language Pathologist in Behavioral Variant Frontotemporal Dementia. In Primary Progressive Aphasia and Other Frontotemporal Disorders: Diagnosis and Treatment of Associated Cognitive-Communication Disorders (pp. 135-156). San Diego, CA: Plural Publishing.

2019

AFTD – The Association for Frontotemporal Degeneration announces Katie’s position as Co-Chair of the National Alzheimer’s Project Act (NAPA) Advisory Council for Alzheimer’s Research, Care and Services with Alan Levy, MD of Emory University. 

Article:

Diagnostic evaluation and monitoring of patients with posterior cortical atrophy

 

Reference: Wong B, Lucente DE, MacLean J, Padmanabhan J, Quimby M, Brandt KD, Putcha D, Sherman J, Frosch MP, McGinnis S, Dickerson BC. Diagnostic evaluation and monitoring of patients with posterior cortical atrophy. Neurodegener Dis Manag. 2019 Aug;9(4):217-239. doi: 10.2217/nmt-2018-0052. Epub 2019 Aug 8. PMID: 31392920; PMCID: PMC6949516.

2018

NPR – In an article on Shots Health News from NPR To Manage Dementia Well, Start With the Caregivers Katie Brandt is interviewed about her work with caregivers for loved ones with Frontotemporal Dementia, utilizing the DICE method for non-pharmacological behavior management. 

2017

FTD PSA – Katie was proud to partner with AFTD and the Discovery Channel to produce one PSA in a series of PSAs to promote a greater awareness for FTD and related dementias. 

Book Chapter:

Frontotemporal Degeneration: Explaining the Importance of Differential Diagnosis

 

Reference: Brandt, K., Dickerson, B., & Pilcher, J. (2017). Frontotemporal Degeneration: Explaining the Importance of Differential Diagnosis. Journal of Aging Life Care, 26(1), 3-8.

2015

The Boston Globe – In an article in Globe South written by Paul Kandarian, Katie is interviewed about her inspiration to launch Love Is Out There and spearhead fundraising efforts for The Frontotemporal Disorders Unit at MGH.  

MassGeneral Magazine – Is a publication from the Massachusetts General Hospital Development Office. Highlights Katie's work to mobilize others and raise money for MGH research.

Project Remind – A non-profit dedicated to raising funds for FTD research.  Highlights Katie's work in the FTD community.

The Boston Globe – Features the Brandt Family and Katie's work raising awareness by sharing her lived experience at the 2015 MassBio Rare Disease Day event.

The Brockton Enterprise – Highlights Katie's leadership while hosting the Comedy for a Cause fundraiser at The Alley Theatre in Middleboro, Massachusetts.

The Health4Brands & HAVAS Worldwide video This 3 minute video provides highlights of Boston’s 2014 Rare Disease Day event at the Massachusetts State House where Katie was a featured speaker.

AFTD Rare Disease Day Insert, Washington Post – March 23, 2013

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Raising awareness, funds, and hope that the cure of tomorrow is not so far from the care of today.

Let's talk to explore how I can lend an authentic, expert voice to your next podcast, webinar, live stream, event keynote, media inquiry, workshop, or staff training.