Media
Delivering Guidance that Illuminates the Power of the Authentic Voice
Podcasts
Connecting with a wide audience of healthcare providers, family caregivers, and advocates in the rare disease and dementia community.
Ask a Matchmaker
Remember Me FTD
Dementia Untangled
Bob’s Last Marathon
Powerful Patient
Publications
& Media Mentions
2023
Article:
Developments in understanding early onset Alzheimer's disease
Reference: Griffin, P, Apostolova, L, Dickerson, BC, et al. Developments in understanding early onset Alzheimer's disease. Alzheimer's Dement. 2023; 1- 6. https://doi.org/10.1002/alz.13353.
Being Patient: Live Talk - Katie Brandt and Dr. Brad Dickerson: Understanding Frontotemporal Dementia. In an interview with Deborah Kahn, Editor in Chief of Being Patient, Katie and Dr. Dickerson discuss how FTD is different from Alzheimer's and how it can impact families.
Article:
Promoting Healthy Aging: Public Health as a Leader for Reducing Dementia Risk
Reference: Eva M J Jackson, MPH and others, Promoting Healthy Aging: Public Health as a Leader for Reducing Dementia Risk, Public Policy & Aging Report, 2023;, prad011, https://doi.org/10.1093/ppar/prad011.
2022
MassBio – The Massachusetts Biotech Council features the Brandt family story of love and loss after her husband’s battle with the rare disease, Frontotemporal Degeneration, in the educational campaign, Cures for the Commonwealth.
AFTD - The Association for Frontotemporal Degeneration spotlight’s Katie’s interview on the Ask a Matchmaker podcast to discuss dating and romantic partnerships while caregiving and navigating the experience of grief and loss.
Book Chapter:
What If It's Not Alzheimer's: A Caregiver's Guide to Dementia
Reference: Dickerson, B., Quimby, M., Brandt, K., & Wong, B. (2022). As the Symptoms Progress: Understanding the Stages of Disease in What if It's Not Alzheimer's?: A Caregiver's Guide to Dementia (pp. 129 - 135). Lanham, MD: Prometheus Books.
Congressionally Directed Medical Research Program: Katie Brandt: A Caregiver and Advocate's Story.
2021
Book Chapter:
Frontotemporal Dementia
Reference: Dickerson, B., Quimby, M., Brandt, K., Lucente, D. & Wong, B. (2021). Frontotemporal Dementia. In Neuropsychiatry and Behavioral Neurology Principles and Practice (pp. 599 - 617). New York, NY: McGraw Hill.
2020
MassBio – The Massachusetts Biotech Council featured Katie on the MassBio Town Hall: Perspectives of the Caregiver with Paul Kidwell.
MassBio – The Massachusetts Biotech Council featured Katie on the cover of the Summer 2020 MassBio Insider Magazine to highlight the 2020 Rare Disease Day event, of which Katie emceed for 5 years.
Butler Hospital – The Butler Hospital Memory and Aging Program spotlighted Katie as a featured caregiver in the Summer 2020 issue of Memory Matters.
Butler Hospital – “Katie Brandt Provides 5 Critical Tips for Dementia Caregiving”
Book Chapter: The Role of the Speech Language Pathologist in Behavioral Variant Frontotemporal Dementia
Reference: Brandt, K., Dickerson, B. & Quimby, M. (2020). The Role of the Speech Language Pathologist in Behavioral Variant Frontotemporal Dementia. In Primary Progressive Aphasia and Other Frontotemporal Disorders: Diagnosis and Treatment of Associated Cognitive-Communication Disorders (pp. 135-156). San Diego, CA: Plural Publishing.
2019
AFTD – The Association for Frontotemporal Degeneration announces Katie’s position as Co-Chair of the National Alzheimer’s Project Act (NAPA) Advisory Council for Alzheimer’s Research, Care and Services with Alan Levy, MD of Emory University.
Article:
Diagnostic evaluation and monitoring of patients with posterior cortical atrophy
Reference: Wong B, Lucente DE, MacLean J, Padmanabhan J, Quimby M, Brandt KD, Putcha D, Sherman J, Frosch MP, McGinnis S, Dickerson BC. Diagnostic evaluation and monitoring of patients with posterior cortical atrophy. Neurodegener Dis Manag. 2019 Aug;9(4):217-239. doi: 10.2217/nmt-2018-0052. Epub 2019 Aug 8. PMID: 31392920; PMCID: PMC6949516.
2018
NPR – In an article on Shots Health News from NPR To Manage Dementia Well, Start With the Caregivers Katie Brandt is interviewed about her work with caregivers for loved ones with Frontotemporal Dementia, utilizing the DICE method for non-pharmacological behavior management.
2017
FTD PSA – Katie was proud to partner with AFTD and the Discovery Channel to produce one PSA in a series of PSAs to promote a greater awareness for FTD and related dementias.
Book Chapter:
Frontotemporal Degeneration: Explaining the Importance of Differential Diagnosis
Reference: Brandt, K., Dickerson, B., & Pilcher, J. (2017). Frontotemporal Degeneration: Explaining the Importance of Differential Diagnosis. Journal of Aging Life Care, 26(1), 3-8.
2016 & Previous
The Boston Globe – In an article in Globe South written by Paul Kandarian, Katie is interviewed about her inspiration to launch Love Is Out There and spearhead fundraising efforts for The Frontotemporal Disorders Unit at MGH.
MassGeneral Magazine – Is a publication from the Massachusetts General Hospital Development Office. Highlights Katie's work to mobilize others and raise money for MGH research.
Project Remind – A non-profit dedicated to raising funds for FTD research. Highlights Katie's work in the FTD community.
2016 American Academy of Neurology Neuro Film Festival – Runner Up Award: Katie Brandt for “Love is Out There: A Story of Love, Loss, and Resilience in the Face of Frontotemporal Dementia,” a very personal and touching account of the loss of her husband, Mike, to this vicious disease resulting in the hope of raising awareness about this rare disorder to help other families navigate the struggle of caring for a loved one with FTD.
The Boston Globe – Features the Brandt Family and Katie's work raising awareness by sharing her lived experience at the 2015 MassBio Rare Disease Day event.
The Brockton Enterprise – Highlights Katie's leadership while hosting the Comedy for a Cause fundraiser at The Alley Theatre in Middleboro, Massachusetts.
The Health4Brands & HAVAS Worldwide video This 3 minute video provides highlights of Boston’s 2014 Rare Disease Day event at the Massachusetts State House where Katie was a featured speaker.
AFTD Rare Disease Day Insert, Washington Post – March 23, 2013
DISORDER: The Rare Disease Film Festival Announces Selected Films –
Katie's film, Love Is Out There, directed by Ghita Benslimane, was one of thirty films selected for screening at the inaugural festival and shown at the Brattle Theater in Cambridge, MA.